Wednesday, September 30, 2009

Answer

On Tuesday I had my laparoscopy. Finally, I have an answer to my current discomfort. Endometriosis. I’m thankful to finally have a diagnosis. 2 spots were found during the laparoscopy and they were lasered off. My incisions are small, one in my belly button, one above my pubic bone. With that being said I’m a bit sore and thankful for the medications and sleep. I’m not exactly sure what the next step is in the process. I have already found an abundance of information on the Internet and surprisingly I was linked up with someone through a Twitter post. I do know that I have an appointment in 2 weeks with the doctor and hope to get a game plan together. There is no cure for endometriosis, as with kidney stones. The average age of endo diagnosis is 27 years and most have the disease approximately 9 years before diagnosis.

I never imagined at the age of 26 I’d have these medical problems. Add onto that the medical problems David has...whew, what a whirlwind. However, I am once again thankful for what we do have and many of the decisions we’ve made. For instance, my becoming a vegetarian. After these problems reared their ugly head, I looked at my entire life/lifestyle thinking, “Am I doing something wrong?” With the kidney stones, yes some of my supplements can encourage formation, which I have now changed. However, when it comes to diet/exercise, I’m doing things right. And when it comes to endo, some meats may encourage the severity. I’m not here promoting vegetarianism to prevent problems, but I do know my diet should not cause further problems. Next, David’s and my decision not to have children. We’ve had a strong conviction for awhile that parenthood wasn’t for us. Endometriosis doesn’t mean infertility, however there is a pretty good chance that this could occur. Having already made the choice on our own that we do not want to have children gave me peace of mind. So instead of that choice being taken away from us due to my diagnosis, we had already made the choice on our own. Of course, I do wish things happened in a different order and that David didn’t have to go through a vasectomy, but you can’t change the past.

As with everything, the future is unknown and we’ll take it one step at a time.

Tuesday, September 08, 2009

Compromise

We all know quite well that I've been sucking at the running motivation stuff lately. We also know that running while in pain hasn't helped either. So, this is the deal....at least for the moment. I have stopped running. Yep. I'm pushing myself to run when oftentimes I don't really want to. On top of that I hurt pretty bad throughout the entire run and afterwords. Not to mention, I don't know how safe it is given that I have no idea what's going on in my body.Not cool. This isn't a permanent thing and I'll be honest, I'm going to dread restarting to run....not the concept, but the actuality of it. I've taken a week off before and needless to say my running suffers severely. Yes, in just a weeks time. Ah well. But, this is the rest of my plan...instead of running I'm going to walk. I'll hopefully be able to keep some athleticism and fitness but have less impact and discomfort. I'm hoping to stick to my plan....if anything I'd go back to running before I quit everything all together.

Friday, September 04, 2009

No Answers....Yet

My day in a nutshell....woke up after sleeping about 1/2 hour, went to work, called doctor for IVP results, left message, nurse called back, IVP results were negative, left work, went to ER, in ER all day having tests performed, LOTS of waiting, ruled out more options, doctor wanted to send me home without definitive diagnosis and for me to "call the doctor Tuesday," I said no and wanted something further done, that I've been patient enough for 2 months, I've gone through 4 doctors searching for a diagnosis, requested transfer or anything that can help the situation, gynecological doctor on call came down, actually listened to my history, gave me options, going with a laparoscopy on the 29th, basically an exploratory surgery using scopes through my belly button. Will still have to wait for answers, but that's due to pre-certification, etc. I've waited this long, I know I can be patient a bit more. Just thankful to have someone once again listening and being proactive. I have a gameplan and something to work towards.

Next Time On Medical Mysteries....

It's 3:26am and I'm up, fully awake. If I didn't feel like shit I could easily go for a run....but of course, that's not an option. I've been tossing and turning in bed since 2:48am and figured I better leave David and Viking alone so that I don't ruin their sleep too. As everyone knows quite well, I've been dealing with abdominal pain for the past 2 months. After basically demanding an appointment (a month ago), my appointment arrived on Wednesday. I felt that my urologist heard what I had to say. I was not bitchy but made it known that I've gotten lost in the shuffle and something needs to be done for me, and soon. I learned a lot at my appointment. For instance, the stones that are present were present on my original ct scan in March. In addition, those stones are located in my kidneys....stones in kidneys don't make you hurt. Oh, and the pain with kidney stones....that's not from them moving (like I was told by the office), it's from them obstructing or partially obstructing flow. My most recent ct scan revealed I still had kidney stones, but nothing in my ureter that should be causing this pain. Keep in mind, the stone that was obstructing last time was considered punctate. It had caused enough irritation to cause inflammation and obstruct.

So, where are we at right now? My doctor wasn't too happy about me falling through the cracks and acknowledged that. He's not 100% sure that this is stone related. There are subtle signs that point away from this being stone related. I had an IVP performed yesterday in hopes of determining if kidney stones are the problem. (The IVP prep was basically what you'd do for a colonscopy....yeah, shitting water for hours straight, not fun). In my opinion I have a 50/50 chance of this being the case. There are approximately 5 other options, including appendicitis. I'm supposed to find out the IVP results today (Friday). After that our gameplan will be made.

I do know this, I'm ready to be fully diagnosed and treated. I'd appreciate it if this could be done before we end up in the poor house and before I go crazy. I'm thankful to have insurance, but when I'm constantly receiving bills for my issues, and attempting to pay them off, I feel like I'm about to lose my mind. I'm also ready to be "me" again. I haven't had a full night's sleep in about 2 months. I wake up cramped in the fetal position every few hours. It's hard to work oftentimes because my mind is not focused. Not to mention, the lack of sleep doesn't help. Running has basically been out of the question. And the nausea. Gah! I have yet to vomit, but that's not saying much. I have a pretty strong stomach, but let me tell you, that vomit is right up in my throat, just ready at any moment. The pain. Oh, the pain. It's constant. It's not necessarily "double over" pain consistently, but it's there and wants to be felt.

So, that's where I'm at. I'm here, fully awake at 4am, and it's about to put me over the edge. I'm trying to be patient, counting down the hours until I receive results from my test, but I must admit I don't know how much more of this I can stomach....literally.

Guess it's too late....Just as I was finishing this entry I made it to the bathroom in time to vomit. Guess my nausea with no vomiting streak is over......